Tag Archives: participatory curriculum development

Research Snapshot: PAS in Rural America

Rayna Sage at a rodeo with mountains in the background
Dr. Rayna Sage.

Approximately 10 million people with disabilities receive paid personal assistance services (PAS) in the United States. For many, these services are critical for social and community participation. However, little is known about rural-urban differences in PAS delivery and consumption, and how these services influence community participation and health.

To address this lack of understanding, RTC:Rural is conducting research on PAS in rural America.

Dr. Rayna Sage, RTC:Rural Project Director, explains the project and its goals, and gives a quick progress update.

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Using IPCD to create a tribal translation of the VR Self-Employment Guide

Screenshot of the Tribal Vocational Rehabilitation Self-Employment Toolkit homepage
Screenshot of the Tribal Vocational Rehabilitation Self-Employment Toolkit home page.

Last week, RTC:Rural was in Connecticut for the Consortia of Administrators for Native American Rehabilitation (CANAR) 2019 mid-year conference held in Mashantucket, CT. RTC:Rural Director Dr. Catherine Ipsen, Research Associate Dr. Meredith Repke, and Knowledge Translation Associate Lauren Smith met with advisor partners and presented the progress to date on the Tribal Vocational Rehabilitation (VR) Self-Employment Toolkit.

CANAR meetings bring together representatives from tribal VR programs across the country two times each year. “The meetings provide an important opportunity to share our work and gather additional stakeholder input about efforts to translate our self-employment materials for tribal VR programs,” said Ipsen.  

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Healthy Community Living featured in KTDRR Casebook

Screenshot of the Cocreating with stakeholders through Participatory curriculum development KT Casebook

Click on the image to visit the casebook entry on KTDRR’s website.

Research done in isolation can often miss critical connections and applications, especially in the adoption phase, when much can be ‘lost in translation’ between the researchers and the end users. Knowledge translation (KT), or the process of facilitating that transfer of information, helps make sure that the research being done and the resulting solutions and products are easily understood, relevant, and useful.

One way to make sure that a project is relevant is to follow the integrated knowledge translation approach, which is to include stakeholders throughout the entire project, from planning to sharing the final results. A specific method within this approach is participatory curriculum development (PCD). The Healthy Community Living project is a successful example of PCD in action. Continue reading

Students Exchange Knowledge in Curriculum Development Process

Healthy Community Living logoRTC:Rural has a long history of engaging and mentoring students, and after graduation many of these students continue in research. No matter what career path they follow, our students take with them knowledge of the disability research field and awareness of disability issues, perspectives that are valuable for all fields of study.

Most recently, ten University of Montana students have been involved in the Healthy Community Living (HCL) project, creating an online multimedia curriculum that will help people with disabilities gain life skills and learn how to set and reach healthy life goals. These students come from a wide range of disciplines, including the School of Media Arts, psychology, community health sciences, and law. Continue reading

Healthy Community Living now in pilot phase

Healthy Community Living logoHealthy Community Living (HCL), RTC:Rural’s multi-media health promotion program to improve the health and wellbeing of people with disabilities, is excited to be moving into the piloting phase of curriculum development.

RTC:Rural researchers work closely with experienced CIL staff, peer experts in independent living philosophy, and staff from the Association of Programs for Rural Independent Living (APRIL) to develop, test, and refine the HCL curriculums. To learn more about the role of the Development Team and the Participatory Curriculum Development process we used to create the HCL curricula, check out “Consumer interviews add to Participatory Curriculum Development project.”

Development Team

We want to acknowledge the tremendous work and collaboration of our Development Team:

  • Pamala Mondragon and Jamie Hardt from Independence, Inc. in Minot, North Dakota
  • Rich Skerbitz and Liz Amys from North Country Independent Living in Superior, Wisconsin
  • Dustin Gibson in Pittsburgh, Pennsylvania
  • Brittany Hepler from the Dale McIntosh Center in Anaheim, California
  • Kimberly Heymann from Alliance of People with disAbilities in Seattle, Washington
  • Ken Mitchell, Kim Gibson, and William Daniels from disAbility Link in Tucker, Georgia
  • Dori Tempio from Able South Carolina in Columbia, South Carolina
  • Sharon Washington and Christine Cook from Blue Water Center for Independent Living in Port Huron, Michigan

Thank you Development Team, it’s been wonderful to work with you all and we so appreciate all of your time and energy devoted to HCL.

The HCL Development Team and RTC:Rural staff.

The HCL Development Team and RTC:Rural staff at a HCL training in Missoula, Montana.

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Consumer interviews add to Participatory Curriculum Development project

Man sitting in a wheelchair in front of several bikes hanging on the wall, talking and gesturing

Photo of an interview with Joe Stone collected for the Healthy Community Living project – an example of some of the multi-media we are collecting as part of our participatory process to make this curriculum more engaging and useful. You can view the video of the interview below.

Healthy Community Living, one of RTC:Rural’s current projects, is developing a multi-media health promotion program to improve the health and wellbeing of people with disabilities. Have you ever wondered how we work with partners and consumers on a project like this? We call the process “Participatory Curriculum Development” and this blog post gives you an insider view of what that means!

Our project is currently working with eight Centers for Independent Living (CILs) using a Participatory Curriculum Development (PCD) procedure to create and adapt two curricula. The two project development teams consist of experienced CIL staff, peer experts in independent living philosophy, and staff members from the Associated Programs of Rural Independent Living (APRIL) and RTC:Rural.

While multi-media is a good way to represent and enhance the concepts and ideas in the content, it must also be interesting and engaging for the program user.  However, there are not many photos, videos and other media that accurately represent people with disabilities in real life settings. To overcome and change this, the development teams are using the PCD process to access existing media, create new media themselves, and engage CIL consumers in the process. This means that the content created for Healthy Community Living truly represents Real People in Real Places.

Although finding or creating media may sound simple in the age of the internet and digital technology, the process for creating multi-media content is a bit more challenging than one might think. The first step is to outline content for each curriculum. This includes identifying areas within the curriculum where multi-media presentations can enhance the content and make it more interesting and engaging.

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UM undergrad presents Facebook data for RTC:Rural participatory health promotion project

Student pointing to her research poster, in the poster hall at a conference.

Megan Miller presents her poster, which features her work on RTC:Rural’s Healthy Community Living project, on April 28, 2017 as part of the University of Montana Conference on Undergraduate Research.

On Friday, April 28, 2017, undergraduate student researcher Megan Miller presented a poster titled “Analysis of Factors Contributing to a Facebook Presence” at the 16th annual University of Montana Conference on Undergraduate Research.  Miller is a junior psychology major at the University of Montana, and completed the project with RTC:Rural for independent research credit during the 2016/2017 school year.

Miller’s research is part of a broader project at RTC:Rural called Healthy Community Living (HCL).  She worked closely with the HCL project leaders to develop and carry out her research over the course of the school year. HCL is part of a five year grant to produce an innovative online multi-media health promotion program. Using a participatory curriculum development process, RTC:Rural researchers are working closely with partners at Centers for Independent Living and advisors around the country, as well as individuals with disabilities, to develop and test curriculum material.

A beginning step for Miller was figuring out how to attract followers to the HCL Facebook page, which is being used to engage and involve people with disabilities, community members, and service providers in the creation and refinement of HCL’s health promotion curriculum. Specifically, the HCL Facebook page is a tool to collect input on specific curriculum content, as well as to curate a collection of photographic and video media for inclusion in the online program. Continue reading