Tag Archives: living well with a disability

Stakeholder Engagement Brings Value and Insight to Researchers at APRIL 2017

two people pointing at a poster and a map

RTC:Rural researcher Lillie Greiman showing our Network Analysis poster

RTC:Rural staff recently traveled to Spokane, Washington, for the 23rd annual Association of Programs for Rural Independent Living (APRIL) conference.

“Attending APRIL gives us a chance to connect with the real people, both service providers and consumers, who work on the ground every day,” said RTC:Rural Research Associate Lillie Greiman. Those connections allow RTC:Rural staff to share, gather feedback and solicit input on our research and resources.  Added Research Associate Andrew Myers, “The APRIL conference gives us the opportunity to hear about the lived experiences of people with disabilities in rural communities all across the county, and these stories can help inform our research and improve the work we do.”

Tools for Today and Tomorrow – Presentation

workshop participants listening to a panel of speakers

RTC:Rural research Tannis Hargrove presenting about the Healthy Community Living program

Researchers shared information about new and current RTC:Rural projects and products in a packed workshop called Asking Question Leads to Solutions: Tools for Today and Tomorrow, which highlighted some of the many RTC:Rural products and tools that have been developed as a result of our research. Presenters provided information about:

All of these resources can be found on the Rural Disability Resource Library website.

Continue reading

Exchanging Knowledge and Expertise: RTC:Rural to engage with stakeholders at APRIL conference

Logo for the 23rd APRIL conference. Indivisible with Liberty and Justice for All.

Spokane, here we come!

RTC:Rural is busy prepping for the 23rd annual Association of Programs for Rural Independent Living (APRIL) conference, which will be held October 20-23rd 2017, in Spokane, Washington. This year’s theme is “Indivisible with Liberty and Justice for All.”

As well as having two vendor tables inviting engagement with conference attendees, RTC:Rural staff will give two presentations. The first, “Social Media: Reaching Farther, Working Better” will be about using social media in telecommunication and to promote independent living skills, and the second, titled “Asking Questions Leads to Solutions: Tools for Today and Tomorrow” will be a workshop featuring RTC:Rural research that has led to tools and products.

Social Media: Reaching Farther, Working Better

In this presentation, RTC:Rural Research Associate Dr. Rayna Sage, Communications Associate Justice Ender, and undergraduate student researcher Megan Miller will share tips and tricks on how Centers for Independent Living (CILs) can utilize social media to enhance workflow, bridge main and branch offices, and reach the rural communities they serve. Ender and Miller will also share research and practical tips on how to use Facebook to share information and encourage discussion. Dr Sage will share insights from her one-on-one interviews with young adults in rural communities, and discuss how they are—or are not—using social media to connect around local events.

Asking Questions Leads to Solutions: Tools for Today and Tomorrow

This workshop will highlight some of the many RTC:Rural products and tools that have been developed as a result of our research. Presenters include Director of Knowledge Translation Tracy Boehm Barrett, Director of Employment Research Dr. Catherine Ipsen, Project Director Lillie Greiman, Training Associate Maggie Lawrence, Communications Associate Kerry Morse, and Knowledge Translation Associate Lauren Smith. Continue reading

Living Well Intro Webinar videos now available

:ogo for Living Well with a Disability

Unable to attend the Living Well Intro webinar we hosted on August 24, or want to review the information covered? Then you’re in luck—the video recordings are now available to view online. There are two recordings from the webinar:

Program overview portion of webinar

The first webinar recording features RTC:Rural Training Associate Maggie Lawrence giving an introduction to the Living Well with a Disability (LWD) program. In the video, she introduces LWD program content and the Living Well Facilitator Training website. She also explains the process for an organization to become a licensed program provider and for staff to become consumer workshop facilitators.

View the LWD Program Overview video here: Living Well with a Disability Intro Webinar: Program Overview

Guest speakers portion of webinar

The second recording features three guest speakers who describe implementing LWD at their CILs: Bert Rios, Outreach Coordinator at S.M.I.L.E. in Yuma, Arizona; Dermot Thiel, Program Director at Wyoming Independent Living in Laramie, Wyoming; and Jude Monson, Program Manager at Summit Independent Living in Missoula, Montana.

The speakers share their insights and experiences of using the LWD program with their organizations, and answer questions from webinar participants about their variations on implementing the program. Rios, Thiel, and Monson each have years of experience implementing the Living Well program with diverse populations and offer their perspectives on program impact, adaptability and sustainability.

View the Guest Speaker video here: Living Well with a Disability Intro Webinar: Guest Speakers Continue reading

August 24 Webinar: Learn More About Our Living Well with a Disability Program

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Mark your calendars for the August 24th webinar about our successful Living Well with a Disability program! The webinar will be presented by RTC:Rural staff and feature guest speaker Bert Rios of S.M.I.L.E. in Yuma, AZ.

Living Well Intro Webinar

This Living Well Intro webinar is designed to provide an introduction to the Living Well with a Disability (LWD) program. It will be held on August 24, 2017, from 10:00- 11:30 a.m. Mountain Time.

Living Well Intro will introduce LWD program content and the Living Well Facilitator Training website. It will also explain the process for an organization to become a licensed program provider and for staff to become consumer workshop facilitators, and conclude with implementation success stories. Several guest speakers who have experience implementing the program at their CILs will be presenting, including: Bert Rios from S.M.I.L.E. in Yuma, Arizona who will speak about implementing Living Well with youth; Dermot Thiel, Program Director at Wyoming Independent Living in Laramie, Wyoming; and Jude Monson, Program Manager at Summit Independent Living in Missoula, Montana.

Registration

To register, please follow the link below: Living Well Intro Webinar Registration | August 24, 2017, 10:00- 11:30 a.m. Mountain Time

This webinar will be closed-captioned, and a recording will be made available. For accessibility requests, please email livingwell@ruralinstitute.umt.edu. Continue reading

Living Well with a Disability Program featured in national webinar on Building Inclusive Programs

On July 18, 2017, staff from RTC:Rural presented at the webinar “Building Inclusive Programs to Serve Adults with Disabilities,” hosted by the National Council on Aging Center for Healthy Aging. The webinar was well attended, with 320 participants from around the country. The webinar was recorded; click here to view the video or download presentation slides.

RTC:Rural Knowledge Translation Director Tracy Boehm Barrett and Montana Disability and Health Program Director Meg Ann Traci provided an overview of our successful Living Well with a Disability (LWD) program including its research and development history, and how it has been expanded and sustained over the years, which has been largely influenced by consumer and service provider input.

A group of seven people, three sitting in wheelchairs, at a workshop outside around a tableLWD is an evidence-based, peer-led health promotion and self-management program for adults with disabilities, recognized by the Centers for Disease Control and Prevention.  It focuses on developing a healthy and balanced lifestyle as a vehicle to reach individual quality-of-life goals.

To date, our program has trained 1,218 Living Well with a Disability workshop facilitators, representing nearly 300 community agencies in 46 states.  Nearly 10,000 individuals with disabilities have been served through the Living Well with a Disability program.

In addition to the presentation on the development, implementation, and successes of LWD, the webinar featured a third presenter, Karl Cooper, Esq. of the American Association on Health and Disability. Mr. Cooper provided an overview of the health and disability landscape in the United States. Helpful resources and strategies for ensuring evidence-based programs are accessible for all were also featured.

“We were very pleased to be invited to participate in this webinar and share its historical research and development,” says Tracy Boehm Barrett. “Living Well has been a launch pad program to engage people with disabilities in self-management of their health in a way that recognizes the unique barriers and secondary health conditions that people with disabilities experience.  In the spirit of building inclusive communities, providing the tools and resources for managing one’s health and well-being is essential to ensuring community participation by all. We want to thank the Center for Health Aging for inviting us to present!” Continue reading

Learn more about our Living Well with a Disability Program in upcoming webinars

:ogo for Living Well with a DisabilityMark your calendars for upcoming webinars about our successful Living Well with a Disability program! On August 3rd and 24th, RTC:Rural will host two free Living Well with a Disability (LWD) technical assistance webinars.


The first webinar, Living Well Technical Assistance, is for past and current organizations that are LWD program providers and individuals who are current facilitators of the program. It will be held on August 3, 2017, from 10:00- 11:30 a.m. Mountain Time.

Living Well Technical Assistance will highlight the new Living Well Facilitator Training website and discuss changes regarding program licensing, implementation, and ongoing technical assistance. This webinar is a great opportunity for organizations who have previously held LWD workshops to get their programs up-and-running and ready to train new facilitators. Learn about the new features of the Facilitator Training website, a self-study online training that includes videos, downloadable resources, and more.

To register, please follow the link below:

Living Well Technical Assistance Webinar Registration | August 3, 2017, 10:00- 11:30 a.m. Mountain Time
For past and current Living Well program providers and facilitators


The second webinar, Living Well Intro, is for organizations and individuals who have not previously participated in the LWD program. It will be held on August 24, 2017, from 10:00- 11:30 a.m. Mountain Time. Living Well Intro will introduce LWD program content and the Living Well Facilitator Training website. It will also explain the process for an organization to become a licensed program provider and for staff to become consumer workshop facilitators. Continue reading

Finding and Using Data for Advocacy guide now available

Cover of Finding and Using Data for Advocacy How-To GuideWe are pleased to share our newly revised Finding and Using Data for Advocacy How-To Guide. Part of RTC:Rural’s new Advocacy Skill Building Toolkit, Finding and Using Data for Advocacy is a resource that can be used to supplement an advocacy skill building workshop, or as a stand-alone resource for anyone who would like to use data to support their advocacy goals.

Finding and Using Data for Advocacy explains what data is and how it is used to support advocacy, and provides links to public data sets related to disability, including RTC:Rural’s Disability Counts Data Finder, the Community & Work Disparities (ADA-PARC) website, and Disability Statistics, among others. The guide also includes prompts to guide users in determining what type of data would be most helpful for their advocacy and how to incorporate that data into their personal testimony.

Other How-To Guides featured in the Toolkit include Writing Effective Letters to Decision Makers and Creating Your Personal Testimony to Influence Policy Change, both of which are available for download on the Advocacy Skill Building Toolkit website.

The How-To Guides were developed and updated from previous products developed by the Research and Training Center on Independent Living at the University of Kansas, and are influenced by RTC:Rural’s successful Living Well with a Disability program.

New Online Training Platform Enhances Living Well with a Disability Program

Screenshot of new Living Well with a Disability websiteRTC:Rural is thrilled to announce an exciting update to the Living Well with a Disability Program with a new online Facilitator Training. The new program updates  make it easier for organizations to train staff and peers, prepare workshop materials, and receive technical support from both RTC:Rural and fellow Living Well with a Disability Program Providers.

After several months of planning, collaboration, and development with key stakeholders, skilled professionals, and multi-media experts, we are proud to share the beautiful new online learning experience to continue our long history of providing this evidence-based health promotion program for people with disabilities. Continue reading

Living Well with a Disability featured in CDC awareness campaign

:ogo for Living Well with a DisabilityLogo for Self Management Education programWe are honored to have our Living Well with a Disability (LWD) program featured in a targeted awareness campaign sponsored by the Centers for Disease Control and Prevention (CDC). The six-month campaign Self-Management Education: Learn More. Feel Better. is being conducted in Wisconsin to promote self-management education (SME) as a tool to manage chronic health conditions.

Self-management education has been proven to reduce symptoms of chronic conditions and to improve overall quality of life. Research by RTC:Rural suggests that implementing SME programs, specifically LWD, could save millions of dollars in Medicare, Medicaid, and private insurance costs and is a promising intervention that has demonstrated improvements in health-related quality of life and health care use. However, many of the public are unaware of available SME programs, and the CDC’s Learn More. Feel Better. campaign aims to bridge this information gap.

According to 2014 American Community Survey data, the rate of disability across the United States is 12.4%. In rural America, that percentage increases to 17.7%. Overall, people living in rural areas are more likely to be unemployed, living in poverty, elderly, or experience a disability, and as a result are more likely to qualify for Medicare/Medicaid.

LWD is one of the six SME programs featured on the Disability-Specific SME Programs campaign website. The CDC has been involved with LWD since its initial development at RTC:Rural in 1987, and has continued to provide funding, support, and promotion of the program at various levels throughout the years. Most recently, RTC:Rural received funding to continue the LWD Program’s history of research and development under a five year grant to translate it into a state-of-the-art online health promotion curriculum. This grant funding is provided by the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) within the Administration for Community Living, at the US Department of Health and Human Services.

LWD is a 10 week peer-facilitated workshop focusing on the health-management needs of people with disabilities, and is currently offered in 46 states by over 250 Centers for Independent Living and internationally. Continue reading

RTC:Rural “Health My Way” App being designed to increase health and wellness for people in rural communities

App icon for RTC:Rural's "Health My Way" app, which is currently under development

App icon for RTC:Rural’s “Health My Way” app, which is currently under development

One of RTC:Rural’s current projects aims to develop and test a new health-related app called “Health My Way.”

The app is being produced as part of the Ecological Decision Support for Health Promotion project led by project manager Tannis Hargrove, M.S.  The app provides a solution for individuals who live in rural areas and are unable to participate in group workshops on healthy living due to limited transportation or lack of other resources.

The idea and content for the app came from two of RTC:Rural’s previous projects. The first, Living Well With a Disability (LWD), is a health-promotion program that helps participants set and reach quality-of-life goals by developing a healthy lifestyle. The LWD program especially aims to help participants manage secondary health conditions. LWD is a 10- to 12-week program facilitated by a trained workshop facilitator who leads weekly meetings for the group.

The second project, Consumer Self-Managed Use of Rural Healthcare Services (CASM), helped participants connect to available healthcare services in their communities. CASM used some of the goal-setting and health-management content from the LWD program and addressed how to overcome specific barriers to using those resources.

“Health My Way” was developed to provide an alternative for those individuals who could not participate in the LWD program due to logistical or personal challenges.  This tool is especially important for those living in rural communities where the cost and accessibility of transportation can be substantial barriers to participation. The app is meant to be completed one-on-one with a staff member from a local Center for Independent Living, which involves more flexibility in location and time than is afforded by the LWD group meetings. Continue reading