Tag Archives: independent living

Advocacy and Voting Resources for People with Disabilities

Advocacy and Independent Living

Four people pose in front of a disability rights flag. Three of the people have visible disabilities. As we approach the 2018 midterm elections, disability advocates are continuing their work to make sure that lawmakers and policy influencers know how different issues affect people with disabilities. Advocacy is an important part of the Independent Living and Disability Rights movements, and has been since the beginning.

Individuals with disabilities are the best experts on their wants and needs, and have the right to make their own choices to fulfill those needs. If they are unable to fulfill a want or need, advocacy is the answer. An important part of advocacy, no matter if the goal is to help one person or many, is establishing a confident voice, developed and supported in a community of peer support.

There are many ways to help people with disabilities develop advocacy skills, and one of those is RTC:Rural’s Advocacy Skill Building Toolkit. The Toolkit is a collaboration between BASE, an affiliate of Summit Independent Living in Missoula, MT, the Association of Programs for Rural Independent Living (APRIL), and RTC:Rural staff, and was developed in response to the needs and interests of CILs and other stakeholders. Continue reading

RTC:Rural starts new Living & Working Well Facilitator Peer-to-Peer Series

Image of Peer-to-Peer Series email invitation. Text description in caption.

RTC:Rural Presents: Living & Working Well Facilitator Peer-to-Peer Series. First call topic: Managing Group Dynamics. A one-hour national conference call to bring together facilitators so we can share knowledge, experiences, and ideas! April 26, 2018. 11 a.m. MT.

Beginning on April 26, RTC:Rural is hosting a new Peer-to-Peer Series for Living and Working Well with a Disability facilitators. These one-hour conference calls are open to all facilitators who are involved in these programs, and there is no cost to participate.

“I started the series because there is so much rich knowledge and experience in this community of facilitators, but there are not very many ways for people in this community to connect and share that knowledge,” said Maggie Lawrence, RTC:Rural Training Associate, who trains Living & Working Well facilitators and provides technical assistance for the Living & Working Well programs. “I see this call series as a platform for facilitators to share experiences, stories, skills, questions, successes, and challenges; everyone is an expert, and everyone is a learner.” Continue reading

RTC:Rural Researcher Offers Graduate Seminar on Rural Disability and Health

Rayna Sage talking into a microphone

Dr. Rayna Sage, RTC:Rural Research Associate, presenting at the 2017 APRIL conference in Spokane, Washington.

RTC:Rural Research Associate Dr. Rayna Sage, who is also an adjunct instructor in the Sociology department at the University of Montana, is offering a graduate-level seminar for the Spring 2018 semester called “Special Topics in Rural Disability and Health.” In the seminar, students will produce rapid literature reviews on topics of interest to the RTC:Rural.

“The first few weeks we’ll be getting a good foothold in disability literature,” said Dr. Sage. “I want to focus on how interdisciplinary the field is.” Students will learn about disability as an identity and as a product of the environment. They’ll also learn the history of disability rights and the Independent Living Movement, as well as how disability functions in the health care system. There will be an emphasis on experiences in rural America.

The main course objectives are to produce rapid literature reviews on topics that are related to RTC:Rural research interests. After choosing a topic, students will research the existing literature on that topic, and produce reviews of these papers. They will work closely with RTC:Rural Knowledge Translation staff to turn their literature reviews into materials that can be used by service providers, policymakers, advocates, and other researchers. These materials will be published on the RTC:Rural website.

Dr. Sage is excited for students to learn about how disability intersects with other social statuses like race, gender, and class from interdisciplinary perspectives including sociology, geography, public health, psychology, and economics while also assisting students in building important writing skills they can take into their academic and professional lives.

For more information, check out the course description flier:

SOCI 595: Special Topics in Rural Disability and Health

Exchanging Knowledge and Expertise: RTC:Rural to engage with stakeholders at APRIL conference

Logo for the 23rd APRIL conference. Indivisible with Liberty and Justice for All.

Spokane, here we come!

RTC:Rural is busy prepping for the 23rd annual Association of Programs for Rural Independent Living (APRIL) conference, which will be held October 20-23rd 2017, in Spokane, Washington. This year’s theme is “Indivisible with Liberty and Justice for All.”

As well as having two vendor tables inviting engagement with conference attendees, RTC:Rural staff will give two presentations. The first, “Social Media: Reaching Farther, Working Better” will be about using social media in telecommunication and to promote independent living skills, and the second, titled “Asking Questions Leads to Solutions: Tools for Today and Tomorrow” will be a workshop featuring RTC:Rural research that has led to tools and products.

Social Media: Reaching Farther, Working Better

In this presentation, RTC:Rural Research Associate Dr. Rayna Sage, Communications Associate Justice Ender, and undergraduate student researcher Megan Miller will share tips and tricks on how Centers for Independent Living (CILs) can utilize social media to enhance workflow, bridge main and branch offices, and reach the rural communities they serve. Ender and Miller will also share research and practical tips on how to use Facebook to share information and encourage discussion. Dr Sage will share insights from her one-on-one interviews with young adults in rural communities, and discuss how they are—or are not—using social media to connect around local events.

Asking Questions Leads to Solutions: Tools for Today and Tomorrow

This workshop will highlight some of the many RTC:Rural products and tools that have been developed as a result of our research. Presenters include Director of Knowledge Translation Tracy Boehm Barrett, Director of Employment Research Dr. Catherine Ipsen, Project Director Lillie Greiman, Training Associate Maggie Lawrence, Communications Associate Kerry Morse, and Knowledge Translation Associate Lauren Smith. Continue reading

Living Well Intro Webinar videos now available

:ogo for Living Well with a Disability

Unable to attend the Living Well Intro webinar we hosted on August 24, or want to review the information covered? Then you’re in luck—the video recordings are now available to view online. There are two recordings from the webinar:

Program overview portion of webinar

The first webinar recording features RTC:Rural Training Associate Maggie Lawrence giving an introduction to the Living Well with a Disability (LWD) program. In the video, she introduces LWD program content and the Living Well Facilitator Training website. She also explains the process for an organization to become a licensed program provider and for staff to become consumer workshop facilitators.

View the LWD Program Overview video here: Living Well with a Disability Intro Webinar: Program Overview

Guest speakers portion of webinar

The second recording features three guest speakers who describe implementing LWD at their CILs: Bert Rios, Outreach Coordinator at S.M.I.L.E. in Yuma, Arizona; Dermot Thiel, Program Director at Wyoming Independent Living in Laramie, Wyoming; and Jude Monson, Program Manager at Summit Independent Living in Missoula, Montana.

The speakers share their insights and experiences of using the LWD program with their organizations, and answer questions from webinar participants about their variations on implementing the program. Rios, Thiel, and Monson each have years of experience implementing the Living Well program with diverse populations and offer their perspectives on program impact, adaptability and sustainability.

View the Guest Speaker video here: Living Well with a Disability Intro Webinar: Guest Speakers Continue reading

Become a certified Working Well with a Disability facilitator- register now!

Working Well with a Disability

September means back to school, changing leaves, pumpkin spice-flavored everything and… Working Well with a Disability Facilitator Training!

Registration for the September 2017 Working Well with a Disability online facilitator training is now open. The training will take place the week of September 18. Space is limited, so please only register if you know you can attend. Registration closes on September 11, 2017.

Working Well with a Disability Facilitator Training Details

Training dates: Sept. 18-22. Training includes online self-study and discussion participation and a live webinar on Sept. 22.

Total time required: 8-10 hours (estimate) over 5 business days, in addition to time to read the Working Well manual.

Cost: $130 per person. Cost includes a manual in your preferred format.

Registration deadline: Sept. 11

How to register: Visit Working Well Sept. 2017 Training Registration

After registration, you will receive an email containing a training schedule, a training overview, and the link with instructions to finalize your registration and payment.

Once you’ve registered, you should also have your agency review and agree to the Organizational Licensing Agreement, which is found here: Working Well Organizational Licensing Agreement Continue reading

Does your bathroom routine drain your battery? How effort and exercise shape community participation

A bathroom with a shower chair and a grab bar in the shower.

Shower chairs and grab bars are some of the adaptive bathroom equipment used in this study. Photo from Healthy Community Living (www.healthycommunityliving.com).

What do showering, brushing your teeth, and “visiting the porcelain throne” have to do with energy levels and community participation? More than you might think, especially for people with mobility impairments.

Effort Capacity and Choice, a current research project at RTC:Rural led by Andrew Myers, is working to better understand how what happens in the bathroom impacts what happens outside of the bathroom. The project is a collaboration between the RTC:Rural, the University of Montana Bureau of Business and Economic Research, and the New Directions program within the Department of Physical Therapy and Rehabilitation Science at the University of Montana.

Previous RTC:Rural research has shown that many people who use mobility equipment live in homes that do not meet their needs, specifically in regards to the accessibility of their bathrooms and the entrances to their homes. 56% live in homes with inaccessible bathrooms, and 57% live in homes with a stepped entrance.

This is especially troubling as the need for affordable, accessible housing is only going to increase in the next few decades with an aging American population. In rural areas, where people are already more likely to be unemployed, living in poverty, elderly, and have a disability, this housing need will be especially severe.

RTC:Rural analysis of the American Time Use Survey has also shown that people with mobility impairments bathe less often, and when they do bathe they spend more time doing so. The Effort Capacity and Choice project builds on this information by investigating whether the amount of effort a person thinks they must exert affects their choices to be active at home and in their community. Continue reading

Figuring out how young adults with disabilities participate in rural community events

RTC:Rural’s research on accessible community events has a new focus. Dr. Rayna Sage, RTC:Rural Research Associate, is leading our Participation in Rural Events among Young Adults with Disabilities research project. The study aims to understand how young adults with disabilities in rural communities participate in community events, and how their community participation can enrich their lives and contribute to their communities in meaningful ways.

Rayna Sage at a rodeo with mountains in the background

RTC:Rural Research Associate Rayna Sage, Ph.D., at the Pioneer Days Rodeo in Ronan, MT where she was conducting in-the-moment interviews for this project

The accessibility of rural community events is directly tied to participation, and community participation can be tied to the accumulation of social capital. “Social capital is a tradeable resource that exists in a relationship. If you have social capital you can use it to gain other kinds of capital,” said Sage. “It provides opportunities to interact with other people who may have access to resources that you don’t have access to.”

These other kinds of capital could include things like favors, experiences, or a job. Another way to think of it could be as “cashing in” on a friendship or social connection in order to secure some sort of benefit, such as a job at a family friend’s store, or access to a behind-the-scenes space at a public event for someone who needs a place to sit in the shade and rest.

Having social capital could be especially important in rural communities, and could help overcome some of the limitations faced by young adults with disabilities as they transition into adulthood. “It’s a vulnerable period for most people, the transition after high school into whatever they’re going into, but for young adults with disabilities it’s even more critical for them to engage in meaningful activities that are going to enhance their lives,” said Sage.

Sage’s previous work has pointed to how the inequality gap between poor/working class and middle/upper class young adults grows during the period of transition into adulthood, even if they go to college. Now, in this new study, she hopes to see if the social capital in rural communities can help young adults with disabilities compensate for some of the other inequalities and challenges they may be facing. Continue reading

Living Well with a Disability Program featured in national webinar on Building Inclusive Programs

On July 18, 2017, staff from RTC:Rural presented at the webinar “Building Inclusive Programs to Serve Adults with Disabilities,” hosted by the National Council on Aging Center for Healthy Aging. The webinar was well attended, with 320 participants from around the country. The webinar was recorded; click here to view the video or download presentation slides.

RTC:Rural Knowledge Translation Director Tracy Boehm Barrett and Montana Disability and Health Program Director Meg Ann Traci provided an overview of our successful Living Well with a Disability (LWD) program including its research and development history, and how it has been expanded and sustained over the years, which has been largely influenced by consumer and service provider input.

A group of seven people, three sitting in wheelchairs, at a workshop outside around a tableLWD is an evidence-based, peer-led health promotion and self-management program for adults with disabilities, recognized by the Centers for Disease Control and Prevention.  It focuses on developing a healthy and balanced lifestyle as a vehicle to reach individual quality-of-life goals.

To date, our program has trained 1,218 Living Well with a Disability workshop facilitators, representing nearly 300 community agencies in 46 states.  Nearly 10,000 individuals with disabilities have been served through the Living Well with a Disability program.

In addition to the presentation on the development, implementation, and successes of LWD, the webinar featured a third presenter, Karl Cooper, Esq. of the American Association on Health and Disability. Mr. Cooper provided an overview of the health and disability landscape in the United States. Helpful resources and strategies for ensuring evidence-based programs are accessible for all were also featured.

“We were very pleased to be invited to participate in this webinar and share its historical research and development,” says Tracy Boehm Barrett. “Living Well has been a launch pad program to engage people with disabilities in self-management of their health in a way that recognizes the unique barriers and secondary health conditions that people with disabilities experience.  In the spirit of building inclusive communities, providing the tools and resources for managing one’s health and well-being is essential to ensuring community participation by all. We want to thank the Center for Health Aging for inviting us to present!” Continue reading

Using Improv to Teach Advocacy: RTC:Rural Advocacy Skill Building Toolkit now available

Advocacy Toolkit Facilitator Guide coverRTC:Rural is excited to release the Advocacy Skill Building Toolkit, a new set of resources for Centers for Independent Living (CILs) and others to facilitate workshops to develop the advocacy skills of emerging Independent Living leaders and youth with disabilities.

The Toolkit is a collaboration between BASE, an affiliate of Summit Independent Living in Missoula, MT, the Association of Programs for Rural Independent Living (APRIL), and RTC:Rural staff, and was developed in response to the needs and interests of CILs and other stakeholders.

The Toolkit is available free of charge on the RTC:Rural website.

“We are so excited that we can help get this toolkit in the hands of CILs and others,” said Mary Olson, Director of Training and Technical Assistance for APRIL. “The Independent Living network has been craving tools that can be used with young adults with disabilities. Every time I talk with a CIL, they ask for exactly what this toolkit is offering. With more and more mandates for Independent Living without more funding, I see this tool being used in almost every CIL in the country as a much needed resource.” Continue reading