Tag Archives: health

Consumer interviews add to Participatory Curriculum Development project

Man sitting in a wheelchair in front of several bikes hanging on the wall, talking and gesturing

Photo of an interview with Joe Stone collected for the Healthy Community Living project – an example of some of the multi-media we are collecting as part of our participatory process to make this curriculum more engaging and useful. You can view the video of the interview below.

Healthy Community Living, one of RTC:Rural’s current projects, is developing a multi-media health promotion program to improve the health and wellbeing of people with disabilities. Have you ever wondered how we work with partners and consumers on a project like this? We call the process “Participatory Curriculum Development” and this blog post gives you an insider view of what that means!

Our project is currently working with eight Centers for Independent Living (CILs) using a Participatory Curriculum Development (PCD) procedure to create and adapt two curricula. The two project development teams consist of experienced CIL staff, peer experts in independent living philosophy, and staff members from the Associated Programs of Rural Independent Living (APRIL) and RTC:Rural.

While multi-media is a good way to represent and enhance the concepts and ideas in the content, it must also be interesting and engaging for the program user.  However, there are not many photos, videos and other media that accurately represent people with disabilities in real life settings. To overcome and change this, the development teams are using the PCD process to access existing media, create new media themselves, and engage CIL consumers in the process. This means that the content created for Healthy Community Living truly represents Real People in Real Places.

Although finding or creating media may sound simple in the age of the internet and digital technology, the process for creating multi-media content is a bit more challenging than one might think. The first step is to outline content for each curriculum. This includes identifying areas within the curriculum where multi-media presentations can enhance the content and make it more interesting and engaging.

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Living Well with a Disability Program featured in national webinar on Building Inclusive Programs

On July 18, 2017, staff from RTC:Rural presented at the webinar “Building Inclusive Programs to Serve Adults with Disabilities,” hosted by the National Council on Aging Center for Healthy Aging. The webinar was well attended, with 320 participants from around the country. The webinar was recorded; click here to view the video or download presentation slides.

RTC:Rural Knowledge Translation Director Tracy Boehm Barrett and Montana Disability and Health Program Director Meg Ann Traci provided an overview of our successful Living Well with a Disability (LWD) program including its research and development history, and how it has been expanded and sustained over the years, which has been largely influenced by consumer and service provider input.

A group of seven people, three sitting in wheelchairs, at a workshop outside around a tableLWD is an evidence-based, peer-led health promotion and self-management program for adults with disabilities, recognized by the Centers for Disease Control and Prevention.  It focuses on developing a healthy and balanced lifestyle as a vehicle to reach individual quality-of-life goals.

To date, our program has trained 1,218 Living Well with a Disability workshop facilitators, representing nearly 300 community agencies in 46 states.  Nearly 10,000 individuals with disabilities have been served through the Living Well with a Disability program.

In addition to the presentation on the development, implementation, and successes of LWD, the webinar featured a third presenter, Karl Cooper, Esq. of the American Association on Health and Disability. Mr. Cooper provided an overview of the health and disability landscape in the United States. Helpful resources and strategies for ensuring evidence-based programs are accessible for all were also featured.

“We were very pleased to be invited to participate in this webinar and share its historical research and development,” says Tracy Boehm Barrett. “Living Well has been a launch pad program to engage people with disabilities in self-management of their health in a way that recognizes the unique barriers and secondary health conditions that people with disabilities experience.  In the spirit of building inclusive communities, providing the tools and resources for managing one’s health and well-being is essential to ensuring community participation by all. We want to thank the Center for Health Aging for inviting us to present!” Continue reading

RTC:Rural “Health My Way” App being designed to increase health and wellness for people in rural communities

App icon for RTC:Rural's "Health My Way" app, which is currently under development

App icon for RTC:Rural’s “Health My Way” app, which is currently under development

One of RTC:Rural’s current projects aims to develop and test a new health-related app called “Health My Way.”

The app is being produced as part of the Ecological Decision Support for Health Promotion project led by project manager Tannis Hargrove, M.S.  The app provides a solution for individuals who live in rural areas and are unable to participate in group workshops on healthy living due to limited transportation or lack of other resources.

The idea and content for the app came from two of RTC:Rural’s previous projects. The first, Living Well With a Disability (LWD), is a health-promotion program that helps participants set and reach quality-of-life goals by developing a healthy lifestyle. The LWD program especially aims to help participants manage secondary health conditions. LWD is a 10- to 12-week program facilitated by a trained workshop facilitator who leads weekly meetings for the group.

The second project, Consumer Self-Managed Use of Rural Healthcare Services (CASM), helped participants connect to available healthcare services in their communities. CASM used some of the goal-setting and health-management content from the LWD program and addressed how to overcome specific barriers to using those resources.

“Health My Way” was developed to provide an alternative for those individuals who could not participate in the LWD program due to logistical or personal challenges.  This tool is especially important for those living in rural communities where the cost and accessibility of transportation can be substantial barriers to participation. The app is meant to be completed one-on-one with a staff member from a local Center for Independent Living, which involves more flexibility in location and time than is afforded by the LWD group meetings. Continue reading

Healthy People 2020 to highlight RTC:Rural Program

square photos of a target with arrows, a collage of question mariks, a person smiling, raindrops on a window, hands of several people stacked on top of one another, a stack of books, a man swimming laps in pool, fruits and vegetables, a bullhorn, tools in a toolbox.

Living Well with a Disability Logo

Living Well with a Disability, a health promotion program developed by RTC: Rural over 25 years of continued research and development, will be highlighted as a successful, community-based program in an upcoming Healthy People 2020 webinar sponsored by the Office of Disease Prevention and Health Promotion. The webinar: Progress Review on Improving Health Outcomes through Inclusion and Participation, August 11th, 12:30-2pm, will highlight how public health efforts are improving inclusion, participation, and health-related quality of life and well-being for Americans with and without disabilities.

In her presentation to talk about the Montana Disability and Health Program (MTDH) as “a community-based initiative with a proven track record of improving health outcomes,” MTDH Director at UM’s Rural Institute for Community Inclusion, Meg Ann Traci, Ph.D.,  will be highlighting the long line of research and development of the Living Well with a Disability health promotion program, MTDH’s integrative and collaborative work with DPHHS and other community stakeholders, as well as the continued development of Living Well with a Disability at RTC:Rural with current funding from the National Institute on Disability, Independent Living, and Rehabilitation Research.

 

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