Resilience in Community Participation

Resilience is the ability to function well both mentally and physically in the face of major challenges, such as coping with a disability. It is the product of both personal factors (such as age when disability occurs or positive attitude) and environmental factors (such as education level or social support available).

In this study, researchers from the University of Kansas will interview individuals from our Ecology of Rural Disability study to understand how and why they overcome personal and environmental barriers to participate in their communities.

Questions the project addresses:

  • How do rural people with disabilities identified as “resilient” cope with everyday stressors associated with having a disability?
  • What personal and environmental factors promote their resilience?
  • What coping strategies and resources do they use that could inform development of interventions for others?

With a greater understanding of personal and environmental factors and how they interact to create resiliency, service providers can take advantage of naturally occurring strategies to develop targeted programs and policies to increase quality of life and community participation for their consumers.

What the Research Says…

RTC:Rural News

Quick Links: Health & Wellness

Current Projects

  • Ecological Decision Support for Health Promotion
    Many communities across rural America are far away from healthcare services. Rural residents with disabilities may not be able to get to those services to address their healthcare needs. This project will provide a consumer directed health program to people with disabilities in rural communities that allows them to follow their own needs and interests for health improvement. Participants will use tablet computers and work with local Centers for Independent Living in order to participate in the program.
  • Healthy Community Living
    Healthy Community Living is a project to develop a multi-media health promotion program to improve people’s health and wellbeing that provides support, health promotion, education and opportunities for people with disabilities to succeed in reaching personal goals. It includes two separate curricula that blend in-person program delivery with online social engagement and website materials.
  • Rural Access to Health Insurance and Health Care
    The Collaborative on Health Reform and Independent Living (CHRIL) is conducting a nation-wide survey to understand how changes in health care reimbursement strategies affects working-age people with disabilities in terms of access to health insurance, and associated health care and quality of life outcomes. RTC:Rural is partnering with CHRIL to increase the rural representation in the survey and to answer rural-specific questions about health care coverage, availability, and quality of life.
  • Building Networks to Expand Living Well Delivery
    Living Well with a Disability is an evidence-based, peer-led self-management program that helps participants to set and reach quality-of-life goals by developing a healthy lifestyle. RTC:Rural provides training and certification for Centers for Independent Living (CILs) to conduct the workshops. However, not all people with disabilities who may benefit from Living Well are connected to their local CILs. By partnering with rural community hospitals and CILs, the Building Networks to Expand Living Well Delivery project will expand the reach of Living Well. Scaling up Living Well to rural hospitals will extend the reach of the program and improve the capacity of rural hospitals to support rural independent community living.

Completed Projects

COMPLETED PROJECTS | 2014 - present

 
  • Resilience in Community Participation
    Employment, social support, health status and the environment influence a person’s ability to deal with difficult experiences. These factors also have an effect on whether or not someone participates in their community. This study will focus on rural resilience to learn more about how people deal with difficulties associated with having a disability even as they participate in the rural community.
  • Pain Interference Patterns
    Because many people with disabilities experience significant limitations in their ability to engage in community activities (e.g., shopping, entertainment, etc.), we wanted to know how pain and environmental conditions affected participation in community activities. To help answer this question, we asked people with disabilities to complete 4 surveys over 18 months about their pain levels, environmental barriers, and participation in daily activities. About one-third of these people also completed six surveys for day for 14 days using an electronic diary that asked similar questions. We found that as people experience more fatigue and pain, their community participation decreased.

COMPLETED PROJECTS | 2008 - 2013

 
  • Consumer Self-Managed Use of Rural Healthcare Services
    In rural America, health management resources are not as available as they are in urban areas which makes managing complex health needs more difficult. One way of improving health status for rural Americans with disabilities is to use existing healthcare services that serve rural communities to promote effective health-related self-management.
  • Nursing Home Emancipation
    Many people with disabilities are institutionalized in nursing homes when they could live independently. Nearly forty percent of nursing homes are located in rural communities with limited access to services, family and oversight. Centers for Independent Living (CILs) have worked to move people from nursing home facilities into independent living situations with great success. Few people, once they leave a nursing home, ever return.
  • Peer Support for Rural Mental Health
    People with disabilities have poor access to mental health services in rural areas, a gap that may be decreased through peer specialist services. Peer specialist providers offer a variety of services to people with disabilities and share similar experiences to those they are serving. They provide peer counseling, advocacy and can help in accessing resources. This project developed and offered a peer support training program to Centers for Independent Living staff and peers to help identify and provide support for mental health needs among CIL consumers. Results showed that people sought peer services when they experienced an increase in mental health symptoms which subsequently were reduced back to normal.
  • Peer Support for Secondary Mental Health Conditions
    When people with disabilities experience mental health symptoms, participation in community life can be reduced. This study surveyed people with disabilities in rural communities to see what kinds of mental health conditions they experience. Implementation of a peer specialist training curriculum for CIL staff and peers indicated that people experiencing elevated mental health symptoms presented for peer support. Subsequently, their symptom levels returned to normal.

COMPLETED PROJECTS | prior to 2008

 
  • Living Well with a Disability
    The Living Well with a Disability workshop is a ten-week evidence-based program designed to improve the health and wellness of people with disabilities. People who have taken the workshop report better health, lower medical costs and improved quality of life.
  • Nutrition
    Good nutrition can be facilitated and supported by organizing the home environment. This line of research describes methods for assessing the environment and the ways in which it promotes healthy eating.
  • Secondary Conditions
    Health problems that come as a result of having a disability, such as high blood pressure and weight gain, can limit people from participating in life activities. This project focused on these secondary health conditions and led to the development of the Living Well with a Disability program.

Products & Training

  • Living Well with a Disability Living Well with a Disability is a peer-led health promotion workshop that focuses on improved quality of life through the development of a healthy lifestyle. Training is available.

External Resources