While many Americans will suffer in the coming recession, people with disabilities in rural areas are especially vulnerable because they are less likely to have an emergency savings fund, have access to paid leave, or be able to work from home.
Additionally, local and national news headline stories revealed the increased burden of the virus among residents and workers in group quarters such as prisons, nursing homes, and juvenile group homes (non-correctional). The high rates of infection and deaths at a long term care facility in Kirkland, Washington, caught the nation’s attention and refocused the public health response efforts on institutional settings.
Because people living in institutional settings are more likely to report disabilities than the general population and these settings are not evenly distributed between urban and rural areas across the United States, rural people with disabilities have a lot at stake in efforts to address the pandemic and outbreaks in institutional settings.
“Not only do you have to travel far to get to beds,” Grieman said, “You’re going to a place where there are more people, where there is also an outbreak, and those beds may also still be in high demand. So, that’s what I find particularly disconcerting.”
RTC:Rural Project Director Lillie Grieman in a recent news article on Public News Service, on why rural people with disabilities are at higher risk during the COVID-19 pandemic.
Rural people with disabilities and barriers to hospital access
Rural people with disabilities face many barriers to accessing health care, particularly Intensive Care Units and hospital beds. Hospital capacity varies greatly, as does the prevalence of people with disabilities. Typically, there are fewer hospital beds and higher rates of disability in rural places than urban ones.
Project Director Lillie Greiman discusses some of these barriers in a recent news article- read or listen to the news story through the following link:
The Healthy Community
Living (HCL) Program is a collection of workshops that support opportunities
for all people to live well and participate in their communities.
HCL is usually delivered through in-person workshops. Since
in-person delivery of services is not recommended or not permitted right now as
we all live with the presence of COVID-19, we’re sharing some ways to make HCL
available to consumers remotely.
Limited offer: Access HCL
for free now through May 1
To help provide another way for people to connect to peer
support, and also for CIL staff to access professional development trainings
they can do on their own time, HCL is offering a free one-year license,
now through May 1.
Recent models from ProPublica, Imperial College, and others predict that millions of people who contract COVID-19 will be hospitalized and many hospitals across the country may not be prepared to treat the influx of patients.
People with disabilities are particularly vulnerable to impacts from COVID-19, both directly and indirectly. While data about how this virus will impact the health and well-being of people with disabilities is currently limited, people with disabilities are often at greater risk of chronic health conditions, and thus may be more susceptible to infection. People with disabilities also face disruptions in services for daily needs, which could exacerbate conditions unrelated to COVID-19.
Overall, individuals who experience disability are at greater risk for being hospitalized either because they have contracted COVID-19 or because pre-existing health conditions have worsened.
Understanding the needs of a community is imperative to effectively plan for any type of emergency response, be it natural disaster or a pandemic. As people around the world are dealing with the COVID-19 pandemic, the needs of people with disabilities should not be overlooked or go unaddressed as members of those communities. To assess the impact of COVID on people with disabilities and their needs, it’s important to understand the prevalence of disability by the functional limitations of people living with disabilities experience in their communities.
According to the American
Community Survey, about 41 million, or 13%, of Americans have at
least one type of disability (ACS 2015). The vast majority (38 million) live in
households with other people and a significant number of people with
disabilities live in group quarters, which includes dormitories, nursing homes,
Approximately 78 million people without disabilities live in
households with a member who experiences a disability. This means that nearly
25% of the US population lives in a household with a member with a disability.
How has COVID-19 impacted you and your rural community?
RTC:Rural is collecting real stories from real people in rural places who are impacted by the current COVID-19 pandemic.
We want to help shed light on what is actually happening in the lives of people with disabilities from the perspectives of consumers, family members, caregivers and service providers. We feel the uniqueness and complexity of individual stories are important to share. The needs of rural people with disabilities should be considered in efforts to address the impact of COVID-19.
Contact us if you are interested in creating and sharing real stories! Our staff can set up an interview time and format that works well for you. Participants can choose whether or not to remain anonymous in the stories we share together.
Check out the Model Systems Knowledge Translation Center posts on the Rural Disability Resource Library, RTC:Rural’s information website. There you can find links to some fantastic resources to support individuals with spinal cord injury (SCI), traumatic brain injury (TBI), and burn injury.
The Model Systems Knowledge Translation Center (MSKTC) works to make sure the latest and best research findings are being used in healthcare decision-making. In order to help improve the health and quality of life of people with spinal cord injury, traumatic brain injury, and burn injuries, MSKTC creates resources and products that share relevant research findings with the people who need this information.
The resources and information created and shared by MSKTC are important resources that help support people with disabilities so they can engage in their rural communities. In promoting this shared goal, RTC:Rural helps to share these resources with people in rural communities who can benefit from this information.